Claire Wineland: Difference between revisions
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In 2017, Wineland announced that The Clairity Project had concluded, after the production company that produced The Clairity Project took total creative control and then claimed all of Claire's content as their own without her consent.<ref name="I stopped doing the Clairity Project because I got screwed over">{{cite web|last1=Wineland|first1=Claire|title=I stopped doing the Clairity Project because I got screwed over|url=https://www.youtube.com/watch?v=zeg83eig0BE|website=YouTube.com|publisher=YouTube|accessdate=16 September 2017|ref=5}}</ref> |
In 2017, Wineland announced that The Clairity Project had concluded, after the production company that produced The Clairity Project took total creative control and then claimed all of Claire's content as their own without her consent.<ref name="I stopped doing the Clairity Project because I got screwed over">{{cite web|last1=Wineland|first1=Claire|title=I stopped doing the Clairity Project because I got screwed over|url=https://www.youtube.com/watch?v=zeg83eig0BE|website=YouTube.com|publisher=YouTube|accessdate=16 September 2017|ref=5}}</ref> |
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Wineland was chosen to be the keynote speaker at [[AARC Congress]], the 63rd International Respiratory Convention and Exhibition.<ref>{{Cite news|url=https://www.aarc.org/claire-wineland-congress-keynote/|title=AARC Congress Announces Claire Wineland As Keynote Speaker|date=2017-07-20|work=AARC|access-date=2017-07-26|language=en-US}}</ref> She was a TEDx speaker and has spoken at a number of conferences worldwide. Claire appeared in an episode of ''[[Red Band Society]]'' and in the documentary series ''My Last Days''.<ref name="Bustle" /> She joined the Philips "Breathless Choir" as a soloist.<ref>http://clairesplacefoundation.org/tag/breathless-choir/</ref> |
Wineland was chosen to be the keynote speaker at [[AARC Congress]], the 63rd International Respiratory Convention and Exhibition.<ref>{{Cite news|url=https://www.aarc.org/claire-wineland-congress-keynote/|title=AARC Congress Announces Claire Wineland As Keynote Speaker|date=2017-07-20|work=AARC|access-date=2017-07-26|language=en-US}}</ref> She was a TEDx speaker and has spoken at a number of conferences worldwide. Claire appeared in an episode of ''[[Red Band Society]]'' and in the documentary series ''My Last Days''.<ref name="Bustle" /> She joined the Philips "Breathless Choir" as a soloist.<ref>http://clairesplacefoundation.org/tag/breathless-choir/</ref> |
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Wineland endorsed Senator [[Bernie Sanders]] for [[President of the United States]] in the [[United States presidential election, 2016|2016 election]], admitting she broke out of a hospital to attend one of his rallies in [[Los Angeles]].<ref>{{cite web|url=https://twitter.com/clairewineland/status/1016774399100313600|title=Claire Wineland on Twitter|publisher=[[Twitter]]|date=July 10, 2018}}</ref> |
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== Death == |
== Death == |
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Revision as of 23:05, 3 September 2018
 | This article is currently being heavily edited because its subject has recently died. Information about their death and related events may change significantly and initial news reports may be unreliable. The most recent updates to this article may not reflect the most current information. |
Claire Wineland | |
|---|---|
| Born | April 10, 1997 Austin, Texas, U.S. |
| Died | September 3, 2018 (aged 21) Austin, Texas, U.S. |
| Cause of death | Stroke |
| Occupation(s) | Activist, entrepreneur, author |
| Years active | 2010 – 2018 |
Claire Wineland (April 10, 1997 – September 3, 2018) was an activist, entrepreneur and author. Through her non-profit organization "Claire’s Place Foundation", she worked to support and organize people with terminal and chronic illness and their families.[1][2] She is also the author of the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis and a TEDx speaker.[1][2]
Early life
Wineland was born with cystic fibrosis in Austin, Texas.[3] She enjoyed performing from a young age and appeared in The Music Man at age 4.[2] At age 13, Wineland’s lungs failed, and she was placed in a medically-induced coma.[4] She was given a 1% chance of survival and awoke after 16 days.[4] Upon her recovery, she founded an organization in support of families affected by terminal illness, specifically cystic fibrosis.[1]
Activism
Claire’s Place Foundation
Wineland founded the Claire’s Place Foundation at age 13.[1] Inspired by the community’s support while she was in a coma, she launched the 501(c)(3) non-profit to provide support to children with cystic fibrosis and their affected families.[2] The foundation operates through two programs: Support Families, which offers personalized support and assistance in areas such as treatment, care processes and emotional support from other parent volunteers; and Extended Hospital Stay Grants which provide financial assistance to families who are struggling with extended hospital stays.[2] Claire’s Place Foundation has provided financial assistance to 26 families to date.[2]
The Clairity Project
The Clairity Project is a website featuring a series of videos, or vlogs, which hope to inspire and educate others about living with a terminal illness.[1] According to the website, Wineland’s activism aims "to shed some light on what it’s really like to be sick, and change the way we view illness and those living with it".[1]
In 2017, Wineland announced that The Clairity Project had concluded, after the production company that produced The Clairity Project took total creative control and then claimed all of Claire's content as their own without her consent.[5]
Other activities
Wineland was chosen to be the keynote speaker at AARC Congress, the 63rd International Respiratory Convention and Exhibition.[6] She was a TEDx speaker and has spoken at a number of conferences worldwide. Claire appeared in an episode of Red Band Society and in the documentary series My Last Days.[2] She joined the Philips "Breathless Choir" as a soloist.[7]
Wineland endorsed Senator Bernie Sanders for President of the United States in the 2016 election, admitting she broke out of a hospital to attend one of his rallies in Los Angeles.[8]
Death
Wineland died, aged 21, on September 3, 2018 from a stroke at an Austin hospital, one week after undergoing a lung transplant.[9]
Legacy
In 2016, Wineland was listed as one of Seventeen magazine’s 17 Power Teens. She received the Fox Teen Choice Award in 2015 and the Gloria Barron Prize for Young Heroes[2] and Los Angeles Business Journal’s Small Nonprofit of the Year Award in 2014.[10]
References
- ^ a b c d e f Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball'. CNN, 5 July 2017
- ^ a b c d e f g h Rosenfeld, Laura. "Who Is Claire Wineland? The 'My Last Days' Subject Is Helping Others Live Their Best Lives". Retrieved 26 July 2017.
- ^ "Meet Claire". North Star Moving. Retrieved 3 September 2018.
- ^ a b "A lung transplant gave her hope for a longer life; now her family prays for 'another miracle'". CNN. 30 August 2018.
- ^ Wineland, Claire. "I stopped doing the Clairity Project because I got screwed over". YouTube.com. YouTube. Retrieved 16 September 2017.
- ^ "AARC Congress Announces Claire Wineland As Keynote Speaker". AARC. 20 July 2017. Retrieved 26 July 2017.
- ^ http://clairesplacefoundation.org/tag/breathless-choir/
- ^ "Claire Wineland on Twitter". Twitter. 10 July 2018.
- ^ "Claire Wineland, inspirational speaker and social media star, dies one week after lung transplant". CNN. 3 September 2018. Retrieved 3 September 2018.
- ^ "Nonprofit & Corporate Citizenship Awards 2014" (PDF). Los Angeles Business Journal.
External links
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