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Revision as of 11:40, 31 May 2020
 | The topic of this article may not meet Wikipedia's notability guidelines for companies and organizations. (May 2012) |
 a better start for tiny hearts | |
| Abbreviation | TT |
|---|---|
| Formation | 1999 |
| Legal status | Registered charity |
| Purpose | Improve the detection, diagnosis and care of heart babies, before and immediately after birth. |
| Location |
|
Region served | UK |
Chair of Trustees | David Lale |
Trustee/Director | Anton Christodoulou |
CEO | Jon Arnold (Ian Averiss retired 2013) |
| Website | Tiny Tickers |
Tiny Tickers is a charitable organisation[1] in Britain that aims to improve the early detection, diagnosis, and care of babies with congenital heart disease through a combination of improving standards, providing specialised training and increasing education and information.
Charity
The Tiny Tickers charity was founded in 1999 by a group of parents and medical professionals who had experience of, and were concerned about, the low prenatal detection rate of congenital heart defects(CHD). At that time, the published detection rate for CHD was 23% on average across the UK, with wide geographic variation (Bull K., Lancet, 1999).[unreliable source?]
Tiny Tickers aims to provide a better START for tiny hearts, through five key areas:
- Standards - to improve standards of care, using appropriately trained and qualified resources
- Training - to improve screening for CHD in hospitals, especially at the routine ultrasound anomaly scan
- Awareness - to inform the public and health professionals about congenital heart disease
- Research - to increase our understanding of prenatal congenital heart defects and the impact on quality of life
- Together - working with charities, professionals, businesses and supporters to make this a reality
Activities
Tiny Tickers aims:
- All women should be offered the opportunity to have their baby screened for heart problems during pregnancy
- This screening examination should detect most types of congenital heart defect
- There should be sufficient resources and trained specialists to care for babies with heart conditions and support families
If these goals are met, more babies with heart conditions would have a prenatal diagnosis, allowing families and doctors to be involved at an earlier stage and give these babies the chance of a better start in life.
Facts and figures
In 2002 Tiny Tickers funded a free hands-on, on-site training programme and piloted it in 12 hospitals. Based on positive feedback from the pilot, the training was extended throughout the UK.
In 2008, Tiny Tickers were asked to train all hospitals in Wales and in 2010, to train 3 regions in England.
In 2011, Tiny Tickers trained over 80 hospitals in England and Wales bringing the total trained to over 140 (or about 2/3rds of maternity hospitals).
References
- ^ "Tiny Tickers overview on the Charity Commission website". Charity Commission.